Whew... that is a lot to process and experience. Your question, "How can I commit to something big when my body feels so unreliable?" really got to me. I think this is what many sensitive souls wonder in trying to survive, while desiring to thrive and be alive. Sending you lots of love, strength and healing energy across the miles. 💞
I think for us HSPs our physical health is so intertwined with our emotional and spiritual health that it can feel impossible to untangle all the threads and figure out what we need to do to heal. I hope more than anything that you are gentle with yourself while you find your way back to full health (which you will).
Thank you so much Jennifer. You are right...it's been so hard to know the cause and effect with so many things happening at once... but I'm trying to peel the layers back. Hope you are doing great 🤗
What a terrible struggle. Thank you for your explanation about POTS. My niece is a sufferer and I had no idea how awful it is. It’s obvious to say good diet, rest and gentle exercise will help- hard to do when you’re in a state of exhaustion. I hope you find support here. You’re not on your own
Thank you so much lovely Wendy! I'm sorry about your niece. This condition is no joke but I'm hopeful I'll improve with all the lifestyle changes I've been making!
Hey Andy, I'm sorry it's ending up being a rough transition - I've been (and still am) there with you in not having the space to engage hardly at all lately...
Sounds to me like you're still pretty deep in the process of decompressing from a lifetime of anxiety and pressure trying to fit into the neurotypical mold - I know I am, and it continues to surprise me how much there is to unpack and how long it's taking...and how much of the process is feeling terrible and having no space for anything but feeling the (crappy) feelings, even tho I'm doing all the things to help 🫤
About POTS specifically, I had a period when I got tired very easily, and my mom does get POTS episodes - I wonder if it might've been related... I think it got better after I had a hysterectomy and they also found and removed a bunch of endometriosis I didn't know I had - I think it was a significant inflammatory influence on my whole system 😳 And I think recognizing and addressing chronic surpressed anxiety helped too...
I feel like I had more thoughts, but that's probably enough for now 😄 Feel free to shoot me a note anytime 💛
Hello Ann so nice to talk again. I feel you and I have so many similarities. I am going to drop you a message. Would be great to chat more on some of the things you mentioned x
I am sending you so much love and healing! I am coming up on 5 years of living with long-COVID, lots, tachycardia, CFS, you name it. It is a long journey and so hard. I want to offer you so much hope though. I’m coming out of a nearly month flare but the months before that were so amazing. This disease is so unpredictable and that makes it so hard to live with. I will tell you that I have been getting a lot of relief and success in my own healing from a combination of acupuncture and MNRI therapy. Our nervous systems have been through so much. I hope you continue to heal and find some amount of relief and joy each day.
Amanda thank you for sharing this with me. I really want to look into MNRI therapy. I'm so sorry you have has such a long battle with Long Covid. But I'm so glad you are finding ways to heal and integrate. I never knew what long Covid was until this.. and its nasty ;(
It is awful 😢 it’s been quite the struggle and is very lonely at times. It has forced me to go within more than anything I have ever been through and while that has been so difficult in many ways it has also molded me into who I am, for that I am grateful. I’m hoping you continue to get love and support, you are the most always.
I’m sorry you are going through these challenging physical health changes, as well as the emotional and identity changes that come from de-escalating the relationship with your partner. Sending you tons of love and light and healing thoughts.❤️🩹
I have pots, mast cell, and some auto immune stuff. There are so many things that can help immensely with pots including a variety of medications and lifestyle management. Getting (and keeping) my mast cell controlled is extremely helpful and very much related to managing my pots and all the symptoms that go with it.
This sounds awful and familiar. I’m finally healing from reactivated EBV likely brought about by Covid.
The thing that has helped me the most has been low dose naltrexone and the Visible tracker/app. Took me 3, almost 4 months to see changes with Visible but it is remarkable. Naltrexone started helping within 12 hours.
Julia that's the best thing I've heard all week as I ordered a bottle of Naltrexone this week after reading about it online!! So glad it's helping you. I've found Claritin the antihistamines really help me so far. I have hope 🙏 We have got this! X
Thanks for sharing your current situation. Idk if I have pots but I do have a few of those symptoms. I've been battling with health issues as well and I don't know what exactly is going on. Trying to seek health via over seas. I feel so drained everyday no matter how many hours of sleep I get. Plus I suffer from Bipolar disorder with severe depression and anxiety so that doesn't help. This reasonates with me so much because also I just got out of a 9 year relationship with my fiance my child's father and that wasn't easy. It's not easy because we still have to co parent. I lost myself in this relationship and especially when I became a mom 7 years ago. I have to get back to myself.
Oh gosh Vaniti I am so sorry you have also been struggling with health issues 😢 It's worth getting POTS checked out. It's a very quick test that most good GPs should be able to do. It's so easy to lose ourselves in relationships and parenting. Well done on taking these big steps back towards yourself. It's not easy and it feels so daunting. But we are strong and amazing women who have our own needs...and can't be attending to others needs the whole time!
You’re going through a lot, my friend. I’m hoping that this shift towards selfhood and self care creates healing for you. Also that your scary exciting project is part of your healing journey. In the meantime I will continue to pray and keep you in my thoughts. ♥️
I'm going through the same thing. the hardest part is getting people to believe you with your systems. I have had POTS for years and lived with it okay until now when my whole body is deciding to give out. I found an Autonomic Dysfunction Clinic in TN. From my research, there are only 3 clinics in the US.
Thanks for sharing Lori and I'm sorry you have had a flare up again. Do you know why? Has there been anything you think triggered the symptoms worsening? Sending rainbow hugs your way 🌈
Thank you anxiety and stress trigger the flare-ups. I have found a doctor who deals with my systems. I got into see him for some miracle because he said it takes a couple of years to get in to see him
Stress and anxiety is a big trigger. Thank goodness for meditation and somatic yoga. I have had POTS for a long time and the doctor I talked to said if you have migraines from an early age which mine started at age 8. Then after I had my child I started having Fibromyalgia. Then, 20 years later, all the other systems and every doctor when I go to the ER always ask if I got the COVID shot. That triggered so many things
So sorry you’re experiencing so much at once. A good friend of mine has POTS and MCAS and my husband was recently diagnosed with EDS and MCAS. It does seem there has been a surge in it recently. Thank you for sharing so openly what your journey has been like and being real with it. Sending you all the good energy for healing and thriving.
Aaaahhh, our nervous system. So much going on for you that life must be overwhelming. I watched an incredible documentary on Prime called HEAL - highly recommend. I'm also learning loads about healing the nervous system with Irene Lyons. When I heard the word 'somatics', it was like a light bulb turned on. You have a long journey ahead of healing, AND, you are not alone, AND you are awesome for sharing. You are wonderful. Sending you much healing energy from one who really understands your health challenges. Much love.
Thank you so much for reminding of that doccie! I watched it a while back and I loved it. Think it's time again:) I'm going to check out Irene Lyons as well...I foresee another rabbit hole in my near future :P Thank you for your support xx
Whew... that is a lot to process and experience. Your question, "How can I commit to something big when my body feels so unreliable?" really got to me. I think this is what many sensitive souls wonder in trying to survive, while desiring to thrive and be alive. Sending you lots of love, strength and healing energy across the miles. 💞
Ahh thank you Angela for always being so kind and supportive. You are the best! ❤️
It's my pleasure, Andy. I'm sending you big comforting love! 💞✨
I think for us HSPs our physical health is so intertwined with our emotional and spiritual health that it can feel impossible to untangle all the threads and figure out what we need to do to heal. I hope more than anything that you are gentle with yourself while you find your way back to full health (which you will).
Thank you so much Jennifer. You are right...it's been so hard to know the cause and effect with so many things happening at once... but I'm trying to peel the layers back. Hope you are doing great 🤗
What a terrible struggle. Thank you for your explanation about POTS. My niece is a sufferer and I had no idea how awful it is. It’s obvious to say good diet, rest and gentle exercise will help- hard to do when you’re in a state of exhaustion. I hope you find support here. You’re not on your own
Thank you so much lovely Wendy! I'm sorry about your niece. This condition is no joke but I'm hopeful I'll improve with all the lifestyle changes I've been making!
Hey Andy, I'm sorry it's ending up being a rough transition - I've been (and still am) there with you in not having the space to engage hardly at all lately...
Sounds to me like you're still pretty deep in the process of decompressing from a lifetime of anxiety and pressure trying to fit into the neurotypical mold - I know I am, and it continues to surprise me how much there is to unpack and how long it's taking...and how much of the process is feeling terrible and having no space for anything but feeling the (crappy) feelings, even tho I'm doing all the things to help 🫤
About POTS specifically, I had a period when I got tired very easily, and my mom does get POTS episodes - I wonder if it might've been related... I think it got better after I had a hysterectomy and they also found and removed a bunch of endometriosis I didn't know I had - I think it was a significant inflammatory influence on my whole system 😳 And I think recognizing and addressing chronic surpressed anxiety helped too...
I feel like I had more thoughts, but that's probably enough for now 😄 Feel free to shoot me a note anytime 💛
Hello Ann so nice to talk again. I feel you and I have so many similarities. I am going to drop you a message. Would be great to chat more on some of the things you mentioned x
I am sending you so much love and healing! I am coming up on 5 years of living with long-COVID, lots, tachycardia, CFS, you name it. It is a long journey and so hard. I want to offer you so much hope though. I’m coming out of a nearly month flare but the months before that were so amazing. This disease is so unpredictable and that makes it so hard to live with. I will tell you that I have been getting a lot of relief and success in my own healing from a combination of acupuncture and MNRI therapy. Our nervous systems have been through so much. I hope you continue to heal and find some amount of relief and joy each day.
https://masgutovamethod.com/the-method/the-mnri-method-approach-programs
Amanda thank you for sharing this with me. I really want to look into MNRI therapy. I'm so sorry you have has such a long battle with Long Covid. But I'm so glad you are finding ways to heal and integrate. I never knew what long Covid was until this.. and its nasty ;(
It is awful 😢 it’s been quite the struggle and is very lonely at times. It has forced me to go within more than anything I have ever been through and while that has been so difficult in many ways it has also molded me into who I am, for that I am grateful. I’m hoping you continue to get love and support, you are the most always.
I’m sorry you are going through these challenging physical health changes, as well as the emotional and identity changes that come from de-escalating the relationship with your partner. Sending you tons of love and light and healing thoughts.❤️🩹
I have pots, mast cell, and some auto immune stuff. There are so many things that can help immensely with pots including a variety of medications and lifestyle management. Getting (and keeping) my mast cell controlled is extremely helpful and very much related to managing my pots and all the symptoms that go with it.
This sounds awful and familiar. I’m finally healing from reactivated EBV likely brought about by Covid.
The thing that has helped me the most has been low dose naltrexone and the Visible tracker/app. Took me 3, almost 4 months to see changes with Visible but it is remarkable. Naltrexone started helping within 12 hours.
Hugs to you💜
Julia that's the best thing I've heard all week as I ordered a bottle of Naltrexone this week after reading about it online!! So glad it's helping you. I've found Claritin the antihistamines really help me so far. I have hope 🙏 We have got this! X
Thanks for sharing your current situation. Idk if I have pots but I do have a few of those symptoms. I've been battling with health issues as well and I don't know what exactly is going on. Trying to seek health via over seas. I feel so drained everyday no matter how many hours of sleep I get. Plus I suffer from Bipolar disorder with severe depression and anxiety so that doesn't help. This reasonates with me so much because also I just got out of a 9 year relationship with my fiance my child's father and that wasn't easy. It's not easy because we still have to co parent. I lost myself in this relationship and especially when I became a mom 7 years ago. I have to get back to myself.
Oh gosh Vaniti I am so sorry you have also been struggling with health issues 😢 It's worth getting POTS checked out. It's a very quick test that most good GPs should be able to do. It's so easy to lose ourselves in relationships and parenting. Well done on taking these big steps back towards yourself. It's not easy and it feels so daunting. But we are strong and amazing women who have our own needs...and can't be attending to others needs the whole time!
You’re going through a lot, my friend. I’m hoping that this shift towards selfhood and self care creates healing for you. Also that your scary exciting project is part of your healing journey. In the meantime I will continue to pray and keep you in my thoughts. ♥️
Thank you Carol 😊 Really appreciate you!
You might want to check out The Disabled Ginger. She has POTS and MCAS and has lots of great suggestions.
Autoimmune here as well with MECFS and CRPS. Solidarity …
Oh wow thanks so much Krista I am definitely going to check her out :) x
I'm going through the same thing. the hardest part is getting people to believe you with your systems. I have had POTS for years and lived with it okay until now when my whole body is deciding to give out. I found an Autonomic Dysfunction Clinic in TN. From my research, there are only 3 clinics in the US.
Thanks for sharing Lori and I'm sorry you have had a flare up again. Do you know why? Has there been anything you think triggered the symptoms worsening? Sending rainbow hugs your way 🌈
Thank you anxiety and stress trigger the flare-ups. I have found a doctor who deals with my systems. I got into see him for some miracle because he said it takes a couple of years to get in to see him
Stress and anxiety is a big trigger. Thank goodness for meditation and somatic yoga. I have had POTS for a long time and the doctor I talked to said if you have migraines from an early age which mine started at age 8. Then after I had my child I started having Fibromyalgia. Then, 20 years later, all the other systems and every doctor when I go to the ER always ask if I got the COVID shot. That triggered so many things
So sorry you’re experiencing so much at once. A good friend of mine has POTS and MCAS and my husband was recently diagnosed with EDS and MCAS. It does seem there has been a surge in it recently. Thank you for sharing so openly what your journey has been like and being real with it. Sending you all the good energy for healing and thriving.
Aaaahhh, our nervous system. So much going on for you that life must be overwhelming. I watched an incredible documentary on Prime called HEAL - highly recommend. I'm also learning loads about healing the nervous system with Irene Lyons. When I heard the word 'somatics', it was like a light bulb turned on. You have a long journey ahead of healing, AND, you are not alone, AND you are awesome for sharing. You are wonderful. Sending you much healing energy from one who really understands your health challenges. Much love.
Thank you so much for reminding of that doccie! I watched it a while back and I loved it. Think it's time again:) I'm going to check out Irene Lyons as well...I foresee another rabbit hole in my near future :P Thank you for your support xx
Amazing stories
This sounds incredibly tough, I hope knowing some of reasons begins to help you
Thank you so much Hannah I really appreciate it 💗
Sorry to hear of your pain, Andrea. 😔 I suspect that my partner has POTS as well. It's scary but I'm glad you're feeling hopeful & positive.
Do you happen to be a Sagittarius??? ♐️
Hahaha no I am a Leo but now I'm curios why you thought I was a Sag 🤣